Volume 1 (2024) · Article 2-2 · English version
Volume 1 (2024) · Article 2-2 · English version
Grote, K., Wegner, S., Gerardo B.J.S. & Metzner, A.
Community-Based Participatory Research (CBPR) is often understood primarily as an ethical approach to involving vulnerable groups. This article argues that CBPR is, moreover, a central prerequisite for the methodological quality and epistemic validity of scientific research. Drawing on a detailed analysis of an empirical case from the field of sign language interpreting, it shows how missing or insufficient participation can affect various phases of the research process - from the development of the research question, through the design of the study, to data collection, analysis, and interpretation of the results.
The analysis makes clear that insufficient involvement of the affected communities can lead to fundamental methodological problems, including inadequately validated survey instruments, undifferentiated samples, and conclusions that lack a sound empirical basis. It further shows that these deficits not only limit the explanatory power of scientific findings but can also durably undermine marginalized groups’ trust in scientific institutions.
Particular attention is paid to the development and application of so-called Sign Language Oriented Easy Language Plus (SEL+), which serves as an example of how a lack of participatory coordination can lead to methodological, linguistic, and cultural tensions. The article situates this problem within the broader context of structural power relations and epistemic inequalities within the scientific system. Finally, it presents Deaf Communities-Based Participatory Research (D-CBPR) as an approach that systematically takes into account the specific linguistic, cultural, and epistemic conditions of Deaf communities. From this, the article derives the demand to establish participation as an independent criterion of scientific quality and to further develop corresponding guidelines, for example within the framework of the German Research Foundation (DFG).
Keywords: Community-Based Participatory Research (CBPR), Deaf Communities, Participatory Research, Methodological Validity, Epistemic Justice, Deaf Studies, Language and Modality, Research Ethics.
Grote, K., Wegner, S., Gerardo B.J.S. & Metzner, A. (2024).DeafParticipation – The Importance of CBPR for the Quality of Research with Vulnerable Groups. Deaf Journal, 1 , Article 2-2. Doi: http://dx.doi.org/10.13140/RG.2.2.26209.11366
Community-Based Participatory Research as a Precondition of Scientific Quality
Community-Based Participatory Research (CBPR) with vulnerable groups¹ refers to a cooperative research approach whose aim is to actively integrate research-relevant questions, experiences, and perspectives of members of a marginalised group into the research and to work with them as equals within the team (in some respects even in a leading role), from the very beginning and throughout the entire research process (Viswanathan et al., 2004).
CBPR democratises research by protecting the rights of vulnerable communities, ensuring that their dignity is not undermined, and dismantling inequalities. Vulnerable people are no longer reduced to research objects but can act as experts in their own cause and participate fully and on equal footing with the rest of the research team in the research work.
This also includes the right to interpretive authority over those specific aspects of research that concern them, a right that is granted from the outset and not contested by researchers. Doing the latter would undermine their role as experts on the affairs of their community and thereby undermine their cultural identity.